The impact of switching on family caregivers of children with cerebral palsy

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TitleThe impact of switching on family caregivers of children with cerebral palsy
Publication TypeJournal Article
AbstractPurpose: This study aimed to enhance our knowledge and understanding of switching, as assistive technology, and how it impacts on family caregivers of children with cerebral palsy with GMFCS levels four or five. Methods: A qualitative method using a constructivist approach was adopted. Purposive sampling was used to recruit five caregivers to participants in this study. Framework analysis was applied to the data collection of semistructured interviews conducted with each caregiver. Findings: The three main themes identified were an investment in the future, resulting in joy and hope. The learning process of switching is resource intensive, time consuming and effortful for caregivers. If caregivers do not perceive this as an investment, then they may not experience the joy switching can bring to their child, and in turn the joy, hope, and caregiver satisfaction it can offer for the future. Conclusion: This research indicates that caregivers often have the greatest impact on whether switching will be adopted in the home. The greatest impact on caregivers is related to their perception on the competence of therapists and coordination of services provided.
AuthorsNicolson, A., Moir L., and Millsteed J.
Year of Publication2013
PublicationDisability and Rehabilitation: Assistive Technology
ISSN1748-3107 (print), 1748-3115 (online)
Publisher DOI
Keywords (MeSH)adaptation, adult, caregivers, cerebral palsy, child, disabled children, family relations, quality of life